What we do
Move4Parkinson’s was established in November 2011 by Margaret Mullarney who was diagnosed with Parkinson’s in 2004. Since her diagnosis, Margaret has discovered that there is a huge range of activities that People with Parkinson’s (PWP’s) can undertake to improve their quality of life. Margaret has also recognised the huge value which PWP’s place on being able to speak with other PWP’s and to hear stories of how others have overcome similar challenges. On her journey so far, Margaret has met many others who share her passion for improving the quality of life of those with Parkinson’s and to give those people a voice.
We have a vision of a world in which People with Parkinson’s (PwP’s) are empowered to achieve their best possible quality of life. With this in mind, Move4Parkinson’s provides information and support to PwP’s on how to improve quality of life through self-management.
Our services are centred around improving People with Parkinsons’ understanding of their illness and teaching them how active self-management can reduce symptoms and enable them to have a better quality of life. We also aim to serve the families and carers of People with Parkinson’s and build a community of support for everyone affected by Parkinson’s.
Choosing the Right Option for You
The Move4Parkinson’s ‘Our Initiatives, Your Choice’ philosophy encourages PwP’s to choose the programmes which best fit their specific needs and requirements. Move4Parkinson’s works with PwP’s to ensure they understand the choices available and encourages them to try new approaches that they might not have previously considered.
Move4Parkinson’s advocates for PwP’s through participation in various working groups and through engaging with healthcare professionals and pharmaceutical organisations to increase understanding of Parkinson’s and the needs of PwP’s.
1. The Five Elements Framework
Our ‘five elements’ framework simplifies self-management into five key areas. You can find more information here. All our services are based within this framework, providing the information and support which PwP’s and others need to understand and implement self-management in their daily lives. Download the Move4Parkinson’s Five Elements Brochure.
2. Patient Empowerment Days
Our first Patient Empowerment Day took place in June 2012 in the Aviva Stadium. Speakers included the Michael J Fox Foundation, the Cure Parkinson’s Trust, Prof. Bass Bloem and Eli Pollard, executive director of the World Parkinson’s Congress. It was a positive and engaging day, including choral singing, dance and a mindfulness session.View the video on YouTube.. We also held a hugely successful International Parkinson’s Empowerment Summit in October 2014 in collaboration with the US based Davis Phinney Foundation, and a patient empowerment day in the Gibson Hotel to mark World Parkinson’s Awareness day 2016. Keep an eye out on our facebook page for information on future events.
3. Information & Support
We aim to share the most up to date information and resources on Parkinson’s as we source it. Resources are placed here on our Move4Parkinson’s website for your information. You can also contact us in the office if you have any queries at firstname.lastname@example.org or 01 295 0060
4. The Voices of Hope Choirs
The Move4Parkinson’s ‘Voices of Hope’ choirs are based in Balally, Dublin; and Ashford, Wicklow. You can find out more about our choirs here.
5. Creative and Fun Forms of Exercise
Recognising the benefits of exercise for PwP’s, Move4Parkinson’s currently run two forms of dance class, our step-dancing classes take place on Wednesday’s in the Stepaside area of Dublin, while our ‘Dance well with Parkinson’s’ classes in partnership with Dance Ireland, take place on Friday’s in Dun Laoghaire. Carers or family members are also welcome to attend. Contact us in the office if you have any queries or would like to attend: email@example.com or 01 295 0060
6. Patient Representation
Move4Parkinson’s advocates for PwP’s through participation in various working groups and through engaging with healthcare professionals and pharmaceutical organisations to increase understanding of Parkinson’s and the needs of PwP’s. We can also offer speakers or representatives with Parkinson’s for events or conferences should you require them.
Move4Parkinson’s Foundation Ltd. is committed to adopting the Governance Code for Community, Voluntary and Charitable Organisations, a code of good practice that holds organisations to the highest international standards of best practice.