The 5 Elements Framework
Our ‘five elements’ framework simplifies self-management into five key areas. All our services are based within this framework, providing the information and support that PwP’s and others need to understand and implement self-management in their daily lives.
Move4Parkinson’s is dedicated to educating, empowering and inspiring People with Parkinson’s and their families or carers (Parkinson’s communities) to gain the knowledge and skills they need to improve their Quality of Life.
We have a vision of a world in which People with Parkinson’s (PwP’s) are empowered to achieve their best possible quality of life. Our services are centred on improving People with Parkinsons’ understanding of their illness and teaching them how active self-management can reduce symptoms and enable them to have a better quality of life. We also aim to serve the families and carers of People with Parkinson’s and build a community of support for everyone affected by Parkinson’s.
Move4Parkinson’s believe that self-management is key to achieving quality of life, but that each PwP should be empowered to choose the self-management activities and approaches which work for them. We cannot tell you what to do or what will work for you. What we can do though is share stories of what has worked for others and guidance on actions or activities to try based on current research.
The Voices of Hope Choirs
Move4Parkinson’s currently has three ‘Voices of Hope’ choirs, based in Dublin, Kilkenny & Wicklow. Membership is open to PwPs, their care-partners, families and friends, No Auditions Required. According to the Sidney De Haan Research Centre at Canterbury University, music therapy and choral singing supports a sense of health and physical well-being, as well as emotional well-being and mood regulation, and social well-being and a sense of belonging for PwPs.
Patient Empowerment Days
Move4Parkinson’s ran their first patient empowerment day in 2012 and have since gone on to run a number of “Parkinson’s Pop Up Café Information Sessions”. M4P’s second patient empowerment day will take place on 3rd October 2014 at City West Hotel and Conference Centre in Dublin and is co-hosted by the US-based Davis Phinney Foundation.
Creative and Fun Forms of Exercise
Recognising the benefits of exercise for PwP’s, Move4Parkinson’s have run yoga classes, and this year they launched specialised set-dancing classes for PwP’s, with care-partners and family members also actively encouraged to attend.
Information & Support
Move4Parkinson’s aims to share the most up to date information and resources on Parkinson’s as they source it. Resources are placed on Move4Parkinson’s website for your information. You can also contact their offices if you have any queries at firstname.lastname@example.org or 01 295 0060
Move4Parkinson’s advocates for PwP’s through participation in various working groups and through engaging with healthcare professionals and pharmaceutical organisations to increase understanding of Parkinson’s and the needs of PwP’s. They can also offer speakers or representatives with Parkinson’s for events or conferences should you require them.
Move4Parkinson’s are currently piloting classes for people with Parkinson’s in Set Dancing and Singing.
These activities are designed around Evidence Based Research.
Often you will need to experiment with different activities and approaches in order to discover what works best, based on your own symptoms, how your body reacts to changes and your own personal preferences and lifestyle.