Have been very busy over the last week, so have not had a lot of time to blog! Spent the weekend in Galway at a conference organised by the Parkinson’s Association of Ireland. I had the privilege of speaking on Saturday afternoon about my journey with Parkinson’s. For me the most important message I have to give is the message of empowerment. I truly believe that we need to take ownership of the management of this disease. How many of us would allow somebody else to manage our bank accounts or our social lives, so why do we give away our power when it comes to our health?
Last July I visited the Waterford Branch (see my blog on “Inspiring People”). When I was out walking on Saturday morning I met one of the guys that I had met in Waterford. He mentioned to me that his wife Maura was with him and she was having difficulties with dyskenisia (which is involuntary movement of the limbs). This condition is very uncomfortable, very tiring and incredibly debilitating. So I went in to chat with Maura and she asked me to do some mindfulness meditation with her, which I had introduced her to in Waterford and which had worked for her. We sat in the foyer of the hotel and Maura and I meditated together and within minutes her whole body had quietened much to the amazement of people around. That afternoon I spoke to the gathering of about 200 people and at that stage Maura dyskenisia had returned but not as severely. We agreed that we would do a meditation with the group and Maura sitting in the front row agreed to my supporting her with the meditation. Again Maura’s body quietened completely. It was a real example of how to empower yourself and manage your illness. Maura had no dyskenisia for the remainder of the day.